RESEARCH:
3rd of August 2017
Chondrial Announces FDA Orphan Drug Designation for CTI-1601, a Novel Investigational Technology for the Treatment of Friedreich’s Ataxia
EVENTS:
19th Of August AFI BBQ Social
Taking place in the Red Cow Moran Hotel on Saturday 19th August ! Starting at 2pm
Come hungry as there will be a tasty BBQ for everyone held outside in the courtyard of the red cow. This will be served between 3 – 4pm.
30th of March – Disability Rights Protest
Ratify the UN Convention for People with Disabilities NOW.
Where: Leinster House, Kildare Street Dublin
When: Thursday 30th of March 11:00 am – 2:00 pm
Despite the Disability Rights Protest in March this year Nothing has happened, absolutely nothing. What is the Minister for Disabilities actually doing?.
Click the link to read more:
Ireland must ratify UN Convention on Rights of People with Disabilities
17th of June 2017
To see more, Click the link:
Cycle Ataxia Annual Cycle in Aid of Freidreich’s Ataxia
Past Events:
28th of February 2017
International Rare Disease Awareness Day 28th of February 2017
To see more, click the link
https://www.eventbrite.ie/e/rare-disease-day-2017-registration-30217091133
Copyright (c) 2017 Ataxia Foundation Ireland (CLG) all rights reserved
