News and Events


3rd of August 2017
Chondrial Announces FDA Orphan Drug Designation for CTI-1601, a Novel Investigational Technology for the Treatment of Friedreich’s Ataxia



19th Of August AFI BBQ Social

Taking place in the Red Cow Moran Hotel on Saturday 19th August ! Starting at 2pm
Come hungry as there will be a tasty BBQ for everyone held outside in the courtyard of the red cow. This will be served between 3 – 4pm.

30th of March – Disability Rights Protest
Ratify the UN Convention for People with Disabilities NOW.
Where: Leinster House, Kildare Street Dublin
When: Thursday 30th of March 11:00 am – 2:00 pm
Despite the Disability Rights Protest in March this year Nothing has happened, absolutely nothing. What is the Minister for Disabilities actually doing?.
Click the link to read more:
Ireland must ratify UN Convention on Rights of People with Disabilities

17th of June 2017
To see more, Click the link:
Cycle Ataxia Annual Cycle in Aid of Freidreich’s Ataxia

Past Events:

28th of  February 2017
International Rare Disease Awareness Day 28th of February 2017

To see more, click the link

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