Ataxia Foundation Ireland (CLG), affectionately referred to as “AFI” Is a charity founded in 2016 by four people each of whom are living with a type of ataxia.
The main aim of the charity is to support people with ataxia. As ataxia sufferers ourselves, the members of the board of AFI are acutely aware of the problems that affect the day to day lives of people with this condition, we feel we are better able to identify and address the problems in the most effective and efficient way possible.
The charity can provide advice and practical assistance in securing respite care, purchasing equipment, advocacy matters, respite, counselling or nursing care from our liaison nurse.
We welcome any person who has Ataxia, their families and friends and encourage you to complete our membership forms, which are available here on our web site, under the “Members Area” tab, or by post on request. Our Liaison Officer is available to talk to anyone who would like to discuss a problem or simply chat to someone who can help.
We particularly would like to encourage those with Ataxia who may not be involved with an organisation for whatever reason to consider speaking to us. We are sensitive to your wishes and feelings and have the experience of Ataxia ourselves and treat everyone with respect and discretion.
We have formed a strong team of people to ensure our organisation is well structured and managed correctly and to optimize the benefits to our members, members families, donors and volunteers and to assure the general public that their money is going where they intended it to go, towards the support and services to members.
We currently receive no Government funding and our services are provided on a voluntary basis, and are funded completely from the generosity of our donors to whom we are very grateful. We have no office, we rent a room once a month from another charity for a token amount for our management meetings, no salaries, no foreign trips to conferences, partnered with another charity mutual co-operation, no huge overheads, which means that we focus all our resources on our members.
We feel strongly that the time has come for us, as people with ataxia and disabilities in general, to have some autonomy over our lives.
Our organisation is breaking the mould and creating a new model in the charity sector. People with the “Lived Experience” actually running their own charity!.
It is very important for us to take some control of our futures, independence has been defined as: Choice, Control & Power, even with Ataxia, we can do a lot for ourselves and have a lot to give, taking a line from the Social Model of Disability:
“When barriers are removed, disabled people can be independent and equal in society, with choice and control over their own lives”.
We have created a page on this website called, “The Models of Disability” Please click the link “The Models of Disability” this page is important to us and is at the heart of our organisation. We want to do our bit to change things not just for people with Ataxia but people with other neurological conditions and disabled people in Ireland.
We invite you to explore our website on a regular basis as we constantly update it and add content. We are always available by phone or email. Please feel free to contact us at any time.
CEO & Executive Board
Ataxia Foundation Ireland a company Limited by Guarantee (CLG) Company Registration: 588973 Registered Charity Number (RCN) 20153540 Copyright (c) 2018 all rights reserved.