Welcome to our new charity, Ataxia Foundation Ireland (CLG) a Company Limited by Guarantee. A new Voluntary National Support Group for people affected by Freidreich’s Ataxia and other Ataxia’s.
Our aim is to provide support services to people with Ataxia and their families and in order to do so, we have established this organisation which is run and managed by people with this condition.
We welcome any person who has Ataxia, their families and friends and encourage you to complete our membership forms, which are available here on our web site, under the “Members Area” tab, or by post on request. Our Liaison Officer is available to talk to anyone who would like to discuss a problem or simply chat to someone who can help.
We particularly would like to encourage those with Ataxia who may not be involved with an organisation for whatever reason to consider speaking to us. We are sensitive to your wishes and feelings and have the experience of Ataxia ourselves and treat everyone with respect and discretion.
You may ask why another charity? We feel strongly that the time has come for us to have some autonomy. It is very important for us to take some control of our futures, independence has been defined as: Choice, Control & Power, even with Ataxia, we can do a lot for ourselves and have a lot to give, taking a line from the Social Model of Disability:
“When barriers are removed, disabled people can be independent and equal in society, with choice and control over their own lives”.
We have created a page on this website called, “The Models of Disability” Please click the link “The Models of Disability” this page is important to us and is at the heart of our organisation. We want to do our bit to change things not just for people with Ataxia but people with other neurological conditions and disabled people in Ireland.
We have signed up to the Charity Regulator Authority Code of Conduct and believe in the process, it helps us as a charity to demonstrate our dedication to transparency, accountability and to assure the general public that Ataxia Foundation Ireland is doing everything right, and are delighted to announce that we have been awarded our Registered Charity Number (RCN) 20153540 and now look forward to doing as much as we can to assist our people with Ataxia.
We invite you to explore our website on a regular basis as we constantly update it and add content. We are always available by phone or email. Please feel free to contact us at any time.
CEO & Executive Board
Ataxia Foundation Ireland a company Limited by Guarantee (CLG) Company Registration: 588973 Registered Charity Number (RCN) 20153540 Copyright (c) 2017 all rights reserved