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Welcome to Ataxia Foundation Ireland (AFI), the New Voluntary National Support Group for people affected by Friedreich’s Ataxia (The most common Genetic Ataxia) and up to 50 other Ataxia’s.

The organisation was founded by four people with Ataxia, to form the board of directors and trustees, we have recently increased the board to seven, five with an Ataxia and two, non-disabled people, and have established our Management Committee, made up of members and volunteers, most of who have supported people with Ataxia for many years.

Our aim is to provide support services to people with Ataxia and their families, we have established this organisation which is run and managed by people with this condition, The CEO has (FA), the Chairman has (FA) and most of the board have an ataxia, it is important to us that we should take on these roles.

AFI is based on the “Social model of disability” which says “People with Impairments are disabled by Society” by poor planning, poor transport systems, poor access to employment & education and the continual disregard of their needs.

AFI was formed “by members for members” as an organization that puts its members first and will make a real difference to people’s lives. AFI has received a very positive response to our charity in terms of donations and from people who recognize what AFI are doing, our only interest is the care and support of our members.

To date, no one in AFI gets paid, AFI receives no funding from the HSE, we have no office and have been operating this way for two years and we are totally dependent on donations, and our donors and volunteers who have been so kind to us, without them, we wouldn’t exist.

It is early days yet but the time will come where some people will need to be paid and we will need an office to make things function better, if we were to do that now, our funds wouldn’t last long, so our strategy is to continue as we are until it is in AFI’s best interest to invest in a premises or employment.

We want to wish everyone who have supported us to date, donors, volunteers, other charities, members of the public a huge thank you from the bottom of our hearts.

“When barriers are removed, disabled people can be independent and equal in society, with choice and control over their own lives”.

Our Mission Statement
“To enhance quality of life for all of us with an Ataxia. We lead positive change and deliver value through experience, information, advocacy and service”.

Yours Sincerely,

Albert Young
Founder & CEO

10 hours ago

Ataxia Foundation Ireland

Cllr. Orla Leyden
#SAVECUISLE
“Cuisle is a magical place — you'll relax, recharge and come home refreshed!” (quote from IWA Cuisle Website).
So why then did the Irish Wheelchair Association make the decision to close Cuisle, the IWA, National Holiday & Respite Centre on 29th November without consulting with its members. This decision has to be reversed! The members have now sought an EGM to reverse the decision to close Cuisle and to interogate the "Hotel model" that they were never consulted on either. I was happy to support IWA members with this work to call for an EGM over the last couple of days. The IWA did not consult with its members or 44 affected staff on this drastic decision.

Oireachtas members please watch this short video on Cuisle ahead of the Joint Committee on Thursday 21st November at 2.30 p.m. Rosemary Keogh CEO, Irish Wheelchair Association has been summoned to appear before the Joint Oireachtas Committee on Health to answer questions from our Oireachtas members.
Cuisle is a wonderful accessible resort offering a unique combination of facilities, as well as highly qualified caring staff, personal assistance, nursing assistance, and the highest standards in customer service. With 34 en-suite bedrooms, Cuisle is the ideal place for large groups or individuals

Thanks to Mimar Media Martina Larkin Hourigan & Michael Hourigan for doing this video edit free of charge to #savecuisle .The edit is taken from a film documentary I worked on it as volunteer commissioning editor / project coordinator with the Suck Valley Development Co-operative and Suck Valley Angling Hub who commissioned it in 2015 and 2016 . The documentary is called Along By The River: Discover The River Suck and features places and people along by the River Suck from Lake O Flynn to Shannonbridge. Mimar media produced this documentary. It was a really positive enjoyable project to be involved with.

The IWA uploaded new impressive promotional video of Cuisle in recent months on the newly branded Cuisle Accessible Resort website. This was cynically taken down approximately 2 weeks ago as was their Facebook page. Therefore it is with great joy that I have uploaded this wonderful video edit about Our Wonderful Cuisle, Donamon Castle and River Suck with 31 accessible angling bays. The spirit of the place and staff can be felt as you listen to Geraldine tell the true story about Cuisle.
Thank you sincerely Mimar Media

Save Cuisle
Alan Kelly TD Margaret Murphy O' Mahony T.D.Stephen Donnelly Dr Michael Harty TD Independent Co. Clare Senator Dr. Keith Swanick Kate O'Connell TD Bernard Durkan TD Louise O'Reilly
Senator Rónán Mullen Senator Colm Burke Senator John Dolan Marc Macsharry Fianna Fáil Micheal Martin Finian McGrath TD Simon Harris TD Leo Varadkar T.D. Eugene Murphy

Roscommon People @Roscommon Herald Shannonside FM Joe Duffy, Liveline RTE, OUR HERO. Newstalk Today FM RTÉ One Irish Daily Mirror Irish Examiner Independent.ie The Irish Times Connacht Tribune - Galway City Tribune
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