About Us

Friedreichs Ataxia is a genetic and progressive disorder of the central nervous system which usually manifests itself in children between the ages of six and sixteen years. Because of the genetic factor young parents could have several children before the condition manifests itself in one or more of the children. The general symptoms are clumsiness, difficulties with balance, lack of co-ordination and, in time, a slurring of speech. Please click the link About Friedreich’s Ataxia

Four people who have Friedreich’s Ataxia have established a new charity “Ataxia Foundation Ireland” a Company Limited by Guarantee (CLG) and these four members are directors and trustees of the company.

It became very apparent that a new organisation was required, one that had to come from the people who have Ataxia themselves, not for the purpose of replacing an existing organisation but to provide services that were not already being provided and from the perspective of a person with Ataxia, someone who has lived with the condition and could help someone come to terms with a recent diagnosis.

When we established Ataxia Foundation Ireland (AFI), we structured the organisation itself and management in such a way, it was in line with the charity regulators guidelines and sets the scene or standard for future CEO’s which will be up for election in March 2018, it protects everyone without compromising the CEO’s ability to function as a manager, leader, driver and visionary of AFI’s strategies and goals as a charity.

We have established a strong team of volunteers comprising of the Board and Trustees, CEO, Management Committee and Member Support Team (MST) providing support to members. The MST consists of Administrator’s, Liaison Officer (Nurse), Information & Communications Officer, all have years of experience working with Ataxia and generously offered to help.

We have gone beyond the standard recommendations of the code of governance, transparency and have also engaged the services of an Accountancy, Auditor firm and Solicitor, we are committed to providing our accounts and other relevant information on our website where the public can see where their donations are going.

We intend to become involved in disability issues, Ataxia knows no borders and effects most parts of the body while the intellect is unaffected, with the nature of Friedreichs Ataxia, we experience many different effects and types of disabilities over time, not just one, it is a degenerative condition.

We have provided membership forms for 1. Members, 2. Family of People with Ataxia and 3. Friends of AFI/Volunteers. Membership does not imply that you cannot be a member of any other organisation, we would encourage you to download the forms available for download, return the completed and signed form to AFI and please share as much as possible with your friends with ataxia and or people who would also be interested in being part of AFI.

We welcome donations and anyone willing to participate in fundraising, we have created a Fundraising Pack and Application forms are available, please call 087 361 6616 or email info@afi.ie and we will send them to you.

6 days ago

Ataxia Foundation Ireland

The 2019 Kodaline charity calendars are now on sale for HTT Ireland and Ciara Lawlor Memorial. They are sold via Etsy/ storenvy or email orders to Kodaline Fan Base for shipping costs. If paying via PayPal, if friends/family option is selected the charities benefit more.

Ciara Lawlor memorial is donating to Ataxia Foundation Ireland www.AFI.ie

For more information please see:-
https://www.kodaliners.com/kodalinecharity.html
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1 week ago

Ataxia Foundation Ireland

Link: https://dcusnhs.eu.qualtrics.com/jfe/form/SV_9QyRckuu3iZMHtP

Hello there, this morning we had a request from Aoife McNicholl and we are making a shout out across the nation to help her get the info she needs.
“As part of my masters programme, I am conducting research on the impact of assistive technology (AT) use in higher education in Ireland. I am looking at the effect of any type of AT such as mobility aids, visual aids, hearing aids, reading/writing/studying aids etc. The study is an online survey which can be accessed on this link.
Are you a student with a disability in higher education in Ireland who uses or could benefit from assistive technology? A research team in DCU is interested in hearing from you. Take the online survey”

More details:
You are invited to participate in a research study entitled 'ENABLE: Educational eNgagement, Assistive technologies, well-Being and quality of Life of students with disabilities in higher Education. The study is being conducted by myself Aoife McNicholl, a research student in Dublin City University (DCU), Professor Pamela Gallagher (Professor of Psychology, DCU) and Dr. Deirdre Desmond (Senior Lecturer in Psychology, Maynooth University). The study has received ethical approval from the DCU Research Ethics Committee.
The overall aim of this study is to examine the experience and effects of assistive technology use among students with disabilities in higher education. Assistive technology can be described as any device which enables individuals to complete or engage with tasks more easily. Participation will involve completing an online survey which will take approximately 30 minutes to complete. You are eligible to participate in this research if you are aged 18 years or older, have a disability, use or could potentially benefit from assistive technology and are a current student in a higher education institution in Ireland.

If you wish to take part or would like more information, you can access the plain language statement and the survey through the link
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© Copyright 2018 Ataxia Foundation Ireland - a Company Limited by Guarantee (CLG) | Company Registration: 588973 | Registered Charity Number (RCN) 20153540. All Rights Reserved. - Enfold Theme by Kriesi