About Us

Friedreichs Ataxia is a genetic and progressive disorder of the central nervous system which usually manifests itself in children between the ages of six and sixteen years. Because of the genetic factor young parents could have several children before the condition manifests itself in one or more of the children. The general symptoms are clumsiness, difficulties with balance, lack of co-ordination and, in time, a slurring of speech. Please click the link About Friedreich’s Ataxia

Four people who have Friedreich’s Ataxia have established a new charity “Ataxia Foundation Ireland” a Company Limited by Guarantee (CLG) and these four members are directors and trustees of the company.

It became very apparent that a new organisation was required, one that had to come from the people who have Ataxia themselves, not for the purpose of replacing an existing organisation but to provide services that were not already being provided and from the perspective of a person with Ataxia, someone who has lived with the condition and could help someone come to terms with a recent diagnosis.

When we established Ataxia Foundation Ireland (AFI), we structured the organisation itself and management in such a way, it was in line with the charity regulators guidelines and sets the scene or standard for future CEO’s which will be up for election in March 2018, it protects everyone without compromising the CEO’s ability to function as a manager, leader, driver and visionary of AFI’s strategies and goals as a charity.

We have established a strong team of volunteers comprising of the Board and Trustees, CEO, Management Committee and Member Support Team (MST) providing support to members. The MST consists of Administrator’s, Liaison Officer (Nurse), Information & Communications Officer, all have years of experience working with Ataxia and generously offered to help.

We have gone beyond the standard recommendations of the code of governance, transparency and have also engaged the services of an Accountancy, Auditor firm and Solicitor, we are committed to providing our accounts and other relevant information on our website where the public can see where their donations are going.

We intend to become involved in disability issues, Ataxia knows no borders and effects most parts of the body while the intellect is unaffected, with the nature of Friedreichs Ataxia, we experience many different effects and types of disabilities over time, not just one, it is a degenerative condition.

We have provided membership forms for 1. Members, 2. Family of People with Ataxia and 3. Friends of AFI/Volunteers. Membership does not imply that you cannot be a member of any other organisation, we would encourage you to download the forms available for download, return the completed and signed form to AFI and please share as much as possible with your friends with ataxia and or people who would also be interested in being part of AFI.

We welcome donations and anyone willing to participate in fundraising, we have created a Fundraising Pack and Application forms are available, please call 087 361 6616 or email info@afi.ie and we will send them to you.

2 weeks ago

Ataxia Foundation Ireland

Also at our Christmas party, board members Fergal Lynch & Rachel Byrne were presented with a cheque for €13,085.58 by Karl Carey, Skydive4Charity. This was raised at our 2018 "Jump from the Sky, for AFI" event.

On behalf of the Members that will benefit from your efforts, we would like to thank the following people who took part.

Fergal completed the skydive along with his sons Shane, Ryan & Ciaran and our youngest Skydiver to date, his daughter Alannah aged 12.

Also, Damian McDonagh, Doireann Fitzpatrick, Eoin O' Brien, Kate Kerrigan, Katie Conway, Katie Kelly from Kilkenny and her brother Mick Kelly, Margo Hannon, Liz Morris, Norah Lavelle, Redmond O' Hanlon, Rachel Bergin, Robert Lynch, Shanice O' Reilly, Sarah Kerrigan, Suzanne Lynch and last but most definitely not least, our Chairman John Kelleher.
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2 weeks ago

Ataxia Foundation Ireland

At our Christmas Party last weekend, Damien Treanor, Errigal Contracts presented our CEO Albert Young with cheque for €70,000 which was raised at Errigal Contracts Charity Gala Ball in August.

Damien is a cousin of our board member, Anita Gracey.

In appreciation, our Chairman John Kelleher, on behalf of the board, presented Damien with a carving from a piece of bog-oak significant to the area in Monaghan Damien is from.

The members & board of Ataxia Foundation Ireland are extremely grateful for this very kind and generous gesture.
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